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Is it very bad if I take this one chance in two weeks to post – seeing as I’m sequestered in a Starbuck’s waiting for straggling students. Straggling and bedraggled as it turns out, in the light rain.

We are in town ‘doing’ some psychogeography – a walk following an algorithm. But it’s wet, alas.

So. News in brief:

1) E again running high in the mornings. Growth. Herewith ends our 2 week stretch of unbroken nights. We must get up and test to try to ascertain at what point he is rising…

2) but not react too aggressively because from Sunday he is away in Wales for a week, no running water, no electricity. Snowdon to climb. Heart attacks to give his parents. He will set running a little high (but not too or he will feel rough and be low energy) the whole time. Hence we go easy on the night levels. For now.

3) this trip should be fine. Should be great. Everyone is prepared. My motherly concern is that he not feel too alone in having to deal and make so many hour by hour by minute judgements in the no doubt changing and out of routine environment. We shall see. Gulp.

4) term has started for me. Hence the headless chicken thing. I think I will come up for air around early November. Alas again.

5) it’s raining. I said that, didn’t I?

6) the KITTENS are spectacular. Like popcorn. Heads held quizzically. Napping in the most awkward positions (sliding down sofa arm, in someone’s crossed ankles). Photos. Will add vid when I get home.


They are now of course escape artists so are underfoot all over the house. And unbelievably lovely. What an experience. And mama Cleo has just been so happy, calling them, checking on them, grooming them. Even though they are weaning. So salutary really….

7) we went to Cornwall for a flying visit – very gorgeous. St Ives Tate, surf beach, and the Eden Project. (sorry, will imbed links at home!) Glorious weather and a special gift of a time, just before we go blinkered for three months…


— Posting on the move, tiny screen!

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Things kind of took a nose-dive on the CGM front last week (much like, indeed, what happens to blog stats after a post: up up up, then two days later, down down down).

ANYWAY.

The damn thing was hardly ever within spitting distance of a fingerprick test. Of course, the delay is 15 minutes or whatever, so it won’t ever be the same, BUT it also failed to show trends accurately, once having a stellar moment of showing 6.5mmols all night — and in reality, E woke on 2.2mmols! Argh!

Then, seemingly arbitrarily, suddenly a number would be close, and showing accurate movement…. Sigh.

We are the process of trying to find out if there are methods of a) calibrating b)reading c) insertion that may help things. Any thoughts welcome!

In the meantime, our path down CGM land is blocked. We don’t have another one in. E has understandably declared it next to useless for him. I’m sure this is not irrecoverable. But it’s important not to waste goodwill: when we have a clearer idea how to help things, we’ll try again. Pressing experimentation on a teenage boy with lots of better things to do is just not a good idea.

As I said, understandably.

***

I’ve also got the hump because just as my sister arrives in town the weather goes grey and rainy. DAMN! We are having a lovely time nonetheless, but it’s a bit of a shame after two weeks of hot sunshine. Damn again.

***

And just so’s you know: I’ve created a ‘Place to Talk’ page. It’s, as E would say, pretty random I guess. But I wanted to make a spot for people to visit and just exchange stories, or say something, anything. No threads, no structure. Just a place to get something out, or celebrate, or commiserate, or observe.

It’s been there for a while, but Louise has started us off, so I thought I’d now mention it. Thank you Louise!

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated

Bubbles

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Distance Travelled

Disclaimer

I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.