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Things were so fraught last week that although I had a lot to say, it all slipped out of my grasp…. We boarded the internet-less boat called ‘Holiday in a Hot Place’, and I left everything dangling.

And here we remain for another week and a bit. Several days in, we are unwinding, reading a book every two days, eating lots of tomatoes and soft cheeses. Not to speak of wine tasting!

E’s numbers are so far so okay, though early on an approaching cold combined with pizza weirdness sent him into a nasty, throwing up hyper (>15 mmols) that took us hours to conquer through 200% temp basals and overriding pump corrections…. The cold itself was hardly anything by comparison. Grrr.

Other than that, all the pool play and walking has meant hours off the pump, 50% temps and still having good numbers for the most part. Mornings tend to be a little high, but this is a holiday pattern: he seems to particularly GROW over breaks! We are also having more slow-digesting food than usual – pasta, rice, lentils – so OH and I are up once again every night testing dual waves – but with life this laid back it’s hardly noticeable.

Which shows how not laid back life normally is, sigh.

I’ll sign off now until after 9th August. A bientot.

— Posting on the move, tiny screen!

Oh well. Over on the Diabetes Support Forum there’s been a wonderful community experiment where loads of folks are all eating spaghetti bolognaise of various sorts, and then tracking blood glucose levels through the evening, so see how people have reacted, managed, and what’s been noticed.

We missed this on the night it was done (two days ago) because we were all just shattered: and pasta in this house means we are up in the night testing, to see the insulin through its full effect and keep E safe.

So last night we all actually crave spag bol, and off we go. Yum. E bolused 12g ‘up front’ (eg all at once) for the actual sauce, and then spread the rest of the carb out through a ‘dual wave’ (dripping it in over x period of time, to try to ‘catch’ the slow-digesting pasta carbohydrate). The dual wave was 30/70 over 5 hours, (30% of the overall pasta up front, with 70% of it spread out over the next 5 hours).

All fine. Except we don’t test as he goes along. Again, we’re all so tired! Four hours later (11.15pm) we test, and he’s 3.6 (mildly hypo) — and sound asleep. Damn!

He manages to have some juice, under great protest, and we are forced to turn the dual wave OFF, to keep him from going lower and lower with the rest of it. We will check him at 1am.

We sit in his room. How the heck did THAT happen? This dual wave normally works.

OH and I hit the same thought without even saying it. E, says OH, did you do exercise today? Poor child has to rise up through his sleep again. Yes, he says, basketball. I’m sorry, I forgot to tell you.

That’s okay, we say. Did you put on a temp basal? (lowering the insulin temporarily to account for exercise)

No, I forgot that too. Sorry.

No worries, we say.

This child/young man rarely forgets anything to do with his diabetes. It really is okay. But this one thing also explains the TWO hypos he had in the afternoon (remember the afternoon problem from the last post? We couldn’t figure out why he’d had two, both at different times than the day before) AND the fact that the dual wave was too much insulin for him…

Damn! We have already come to the conclusion that exercise means he needs to be on a temp basal (lowererd insulin) all night. If we know about it, that is!

At 1am, he’s 6.9mmols. And by morning, he’s of course up to 11mmol. Which is too high. Which is the pasta going in late without enough insulin.

We couldn’t have taken the chance and given him more insulin, do you see? Not in the middle of the night, with unpredictable exercise still in play and an unknown amount of carb from the pasta yet to go in… He might go mega low.

Everything is thought through. But just because you think it through doesn’t mean it works.

Sigh!

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated

Bubbles

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Distance Travelled

Disclaimer

I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.