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Things kind of took a nose-dive on the CGM front last week (much like, indeed, what happens to blog stats after a post: up up up, then two days later, down down down).

ANYWAY.

The damn thing was hardly ever within spitting distance of a fingerprick test. Of course, the delay is 15 minutes or whatever, so it won’t ever be the same, BUT it also failed to show trends accurately, once having a stellar moment of showing 6.5mmols all night — and in reality, E woke on 2.2mmols! Argh!

Then, seemingly arbitrarily, suddenly a number would be close, and showing accurate movement…. Sigh.

We are the process of trying to find out if there are methods of a) calibrating b)reading c) insertion that may help things. Any thoughts welcome!

In the meantime, our path down CGM land is blocked. We don’t have another one in. E has understandably declared it next to useless for him. I’m sure this is not irrecoverable. But it’s important not to waste goodwill: when we have a clearer idea how to help things, we’ll try again. Pressing experimentation on a teenage boy with lots of better things to do is just not a good idea.

As I said, understandably.

***

I’ve also got the hump because just as my sister arrives in town the weather goes grey and rainy. DAMN! We are having a lovely time nonetheless, but it’s a bit of a shame after two weeks of hot sunshine. Damn again.

***

And just so’s you know: I’ve created a ‘Place to Talk’ page. It’s, as E would say, pretty random I guess. But I wanted to make a spot for people to visit and just exchange stories, or say something, anything. No threads, no structure. Just a place to get something out, or celebrate, or commiserate, or observe.

It’s been there for a while, but Louise has started us off, so I thought I’d now mention it. Thank you Louise!

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I have heard from two parents today: one, H, whose son was diagnosed only 10 days ago.

For both, and for me and us, the lasting through is so hard. The holding-up. The way your life is shipwrecked. And you have to wander around, slowly re-collected, gathering up, all the pieces, new and old.

I find myself being in the position of old hand. 18 months in. Like in grief, you watch yourself move further away from that moment of change, that time of unremitting despair and numbing hard work.

I guess all I want to say is that it’s not that I don’t remember before diagnosis – it’s that I can’t, without the same crush of sadness as I felt at the start. So I don’t take myself there often.

So in that sense, um, I guess I’m not much help. Sorry.

But in every other sense: we help each other. Our children will grow up strong and healthy. Burdened – yes- but like us, with a deep understanding of what’s important.

They didn’t need this. Nor did we. Nor did our families.

Damn.

Thank goodness for small mercies. Friendship of a whole new type, to a whole new degree. Even in passing it means something real.

Hang in there, all of us.

– Posted using BlogPress from my iPhone

Location:Tile Kiln Hill,,United Kingdom

I just want to say to the world that we are grateful. For our son only having type 1 diabetes, and not, like the son of a friend of ours, something else so sinister that his life hangs in the balance.

That our son was born in this age and country. That we have a national health system.

And for so many things personally: each other. A fine son and daughter.

But mostly, today, that science and medicine know how to keep our son alive.

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated

Bubbles

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Distance Travelled

Disclaimer

I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.