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Things were so fraught last week that although I had a lot to say, it all slipped out of my grasp…. We boarded the internet-less boat called ‘Holiday in a Hot Place’, and I left everything dangling.

And here we remain for another week and a bit. Several days in, we are unwinding, reading a book every two days, eating lots of tomatoes and soft cheeses. Not to speak of wine tasting!

E’s numbers are so far so okay, though early on an approaching cold combined with pizza weirdness sent him into a nasty, throwing up hyper (>15 mmols) that took us hours to conquer through 200% temp basals and overriding pump corrections…. The cold itself was hardly anything by comparison. Grrr.

Other than that, all the pool play and walking has meant hours off the pump, 50% temps and still having good numbers for the most part. Mornings tend to be a little high, but this is a holiday pattern: he seems to particularly GROW over breaks! We are also having more slow-digesting food than usual – pasta, rice, lentils – so OH and I are up once again every night testing dual waves – but with life this laid back it’s hardly noticeable.

Which shows how not laid back life normally is, sigh.

I’ll sign off now until after 9th August. A bientot.

— Posting on the move, tiny screen!

Well, as if I needed reminding how important feeling ‘connected’ is to us now, in this day and age, and with all this happening all the time, there has been a pretty hilarious/awful series of events which have unraveled us…

1) internet at home STOPS working last Monday. Apparently new stuff coming day after tomorrow. This means: * no Facebooking or podcasts for E * no forum-checking or surfing for me * no idea what the weather is for any of us * no access to email except through teeny-tiny iPhone keyboards, where only the most rudimentary messages can be tackled without a headache and a nervous breakdown * no Moshi Monsters for daughter M * no cuteoverload for same * no TV license renewal

2) last week was half term. Which meant: * children home every day * not being able to go into work as much as usual, even though internet not working at home * therefore falling behind with work business * more running around dropping children at friends and in town * and therefore even less work done

3) thousands of words of marking need arbitrating. Which means: *unexpected hours of reading * extra reports need writing *even though there is no internet access at home * the children are on half term * and I can’t do as much work in a week as I normally would

4) we have forgotten to renew not only the TV license, but the CAR TAX as well. Which means: *because it is more than a month overdue, we can’t do it online, so must bring in a logbook to the local post office *only we can’t find the most recent logbook, only an older one * therefore we have to go to a town which is 40 minutes away to request a log book *and then request a tax disc *and I have to do this today because OH is in a meeting all day *only the car is not in my name *so he has to write a note * and we have to hope it will be accepted *even though we were told it WOULD be accepted *by the man on the phone at 8am this morning.

5) I couldn’t get a hair appointment until Friday. Which means: *I look my age *which upsets me because I normally don’t *and depend on people gasping and practically squeaking out but you don’t look it! when I tell them I am *45 * almost 46.

***
I feel so much better having written all that! Thank you for listening.

The good news is that aside from the last couple of days when E has been inexplicably too high (and pasta seems again to be causing us a problem, alas), numbers have been good generally. Nights are doing something funny so we are up with the 3am club at the moment, but again, from then until 7am, he is as solid as a rock. Long may it last.

More reassuring news is that his annual review went well. Consultant, dietician, diabetes nurse, eye examiner and person who took gallons of his blood (ewww), delighted with him. Fatty lumps appearing on his tummy from overuse of one area, which may be inhibiting some insulin absorption, but we will slowly tackle this. It’s hard to manage something new. It’s important to feel safe, rather than always at risk, on the edge, as a change of site for the pump feels. But we will work on it.

Also potentially good or at least different news is coming home with the new Roche Mobile meter. It has a tape inside it which serves as the testing strips, and rotates with each use, so you just dab the blood on. No more foil! No tubes of strips! Also, the lancet drum has six lancets in it, and can be attached to the side of the meter, so it’s really quite compact. The clinical waste is nil. Which is a great relief, because if used lancets and foil packets from test strips were breadcrumbs — our birds would be very fat. We find them EVERYWHERE, dropping out of E’s pockets, shaken out of his bed, his bag, the sofa, our cupboards…Now no more!

Two disadvantages to the meter thus far: it is quite noisy. The rotating of the test tape is mechanical, and it does so every time you open it for a new test. It sounds like an old digital camera being powered on. The finger pricker priming is also quite loud, though the thing itself is more solid than the Optium Exceed we’ve been using. The noise may bother E in time, especially in some locations or at school. But so far not having to balance the thing on his knee or someone’s back while he tears open foil and places a lancet in and out of the pricker, is winning.

Second disadvantage: not entirely dependable. There are times when it seems like there is enough blood on the tape, but then it throws an error message that there isn’t. You then need to close the tape place, wait a second, and re-open it, making sure it’s rotated. The stuff that is testing tape and the stuff that isn’t are the same colour, unfortunately. And we have already several times dabbed blood on tape which isn’t actually test tape, causing real frustration, because then you have to start over AGAIN.

Saying all this, it’s a promising thing. The problems with the dependability will either get better with use and understanding of the particularities — or get more bothersome, which will mean we give up on it. But so far so better.

Sorry for the going on, folks…And yes, I’m using some work time for this, because THERE IS NO INTERNET AT HOME!

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated

Bubbles

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Distance Travelled

Disclaimer

I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.