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But we don’t. After thinking the high numbers of the last post were set probs etc, here we are on the third day since the last change and ALL IS WELL. A relief. Stable ish numbers. A night’s sleep….

And lovely Cleo has passed the worst of being on heat. After two nights locked in the bathroom she’s to all of our great reliefs a bit more settled. Phew! No more earplugs, and a bit happier a cat….

Finally, exams: I phoned the school and they suggested 10% extra time to account for E’s lack of concentration. Which he has done.

It’s good to get in the habit of being obvious and up front about all this: hypo or hyper, he can lose at least 15 mins of a test to treating it. Now, he’s a VERY bright boy. He would do ok no matter what. We know this. The school know this.

But he never complains. He gets on with things. He thrives and excels. So when he says he thinks his performance is affected by his diabetes, the school listens. They want to set up similar formal provisions for him for GCSEs. Just to give him the best of all possible worlds.

They believe in him and trust him. I was quite choked up on the phone, hearing how much they thought of him. In his RS public exam the next day (part of a GCSE) his numbers were fine. But arrangements had been made for him to sit close to the door. All of the invigilators knew the situation. He came home saying he felt so much better now that nothing was unknown. Before he had gone into every exam explaining…. Uncomplaining and necessary, but hard work I’m guessing before an exam.

Anyway. For the first time I feel, tentatively, that the school is beginning to understand….

***

Morning at the hut.

– Posted using BlogPress from my iPhone

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…anyone thought that life with diabetes was anything less or more than consistently inconsistent, last night things stayed weird and also got weirder.

6.8mmols at 10.30pm. Too low given last few nights. So, a whole piece of bread and some cheese — 15g carb, quite a lot — which we did not give insulin for. We actually anticipated a high reading this morning with that…

Woke on 3.6mmols. Half a carton of juice.

Sigh.

No, we did not get up in the night. He, for once, just couldn’t handle it. He is exhausted from his nightly 4 hour performances, and needs sleep desperately.

Not to speak of us too.

However. We will get up tonight to see if we can find out at which point the drop is happening. Traditionally any change with E seems to take place before 2am. If it is happening after this time, this is truly a different turn of events.

We will get up and test, and treat accordingly.

Latest theory: he is eating dinner very early in order to get out the door for the performance. He is also then sort of burning it all off, playing in the performance (though it’s only a little physical, really, blowing in a reed! Brain activity?).

So we now wonder if somehow this is all adding up, bringing him lower than usual, with no food at all knocking around, and high levels of concentration for the performance…?

If tonight shows this again, we will use a low temp basal function (eg lower his insulin over the course of the whole night) rather than actually change what has been a very stable basal pattern for him overnight… Until the performances are over, and then see where we are… If indeed we can even see the wood for the trees.

***

GCSE went very well apparently. I spent half of yesterday morning berating myself for not having clarified with the invigilator E’s procedures for hypos etc…Fortunately, not necessary.

***

I need to do a Life 101 post. Too much diabetes! Too much diabetes! Pah to diabetes!

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated

Bubbles

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Distance Travelled

Disclaimer

I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.