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Things were so fraught last week that although I had a lot to say, it all slipped out of my grasp…. We boarded the internet-less boat called ‘Holiday in a Hot Place’, and I left everything dangling.

And here we remain for another week and a bit. Several days in, we are unwinding, reading a book every two days, eating lots of tomatoes and soft cheeses. Not to speak of wine tasting!

E’s numbers are so far so okay, though early on an approaching cold combined with pizza weirdness sent him into a nasty, throwing up hyper (>15 mmols) that took us hours to conquer through 200% temp basals and overriding pump corrections…. The cold itself was hardly anything by comparison. Grrr.

Other than that, all the pool play and walking has meant hours off the pump, 50% temps and still having good numbers for the most part. Mornings tend to be a little high, but this is a holiday pattern: he seems to particularly GROW over breaks! We are also having more slow-digesting food than usual – pasta, rice, lentils – so OH and I are up once again every night testing dual waves – but with life this laid back it’s hardly noticeable.

Which shows how not laid back life normally is, sigh.

I’ll sign off now until after 9th August. A bientot.

— Posting on the move, tiny screen!


I know this isn’t what happens. I know it’s all controlled by invisible and unpredictable, minute shifts and changes, electrical messages and whims in the body…

But here’s what happens: cross country running yesterday for E. Traditionally bad news. All day though he manages well, no hypos. Last night before our bed he’s 7.7 mmols. We would normally put him on 95% temp basal (slightly lower the insulin) to account for the exercise. Only the night before, we’d had him on 110% (slightly raised insulin) to combat high numbers — and it had held him mega-stable til morning.

So we reason we will keep him on 100% — which is in effect a reduction from the night before. So should be okay.

We also decide not to test. There is no extra insulin, and only the cross country to be dealing with. And it has been controlled all day. And it has been two weeks since we’ve had an unbroken night.

This morning I wake him on 1.7 mmols.

This is for most an unequivocally dangerous level. For many, this would signal true disorientation and unconsciousness. Fortunately, for E, he seems merely to feel a ‘bit weird’. It’s staggering that he wakes at all, that he knows to drink juice. I am able to have a conversation with him, wanting to keep him awake. This is not the first time he’s been at this sort of level — and each time, he seems to be reasonably okay.

I don’t want to think about what would happen were he on his own. Maybe someone can enlighten me to this.

So this morning, the only way we can see to have prevented this hypo was to get up in the night and test. Ha ha, someone is saying. That’s what you get.

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated


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Distance Travelled


I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.