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I have made a point of trying to build links with fellow d-bloggers. And I’ve got my all-time favourite support forum on my sidebar too.

But something else occurred to me yesterday. I want to tell you about JDRF. Juvenile Diabetes Research Fund. A global organisation which funds research of all sorts into type 1 diabetes. And specifically, into a CURE. Yes, a CURE.

This will happen some day. Don’t get me started, because even though the song I’m going to link to here makes me happy, thinking about how badly we all want a cure makes me cry.

If you don’t know JDRF, you need to. It’s much less well known that Diabetes UK, which also helps fund research and support those with diabetes — though Diabetes UK does spread the it out a bit, and take on type 2 diabetes as well. But JDRF is the core stuff. There’s a branch near you. And a central one in your country. 

We give to JDRF. We can’t leave it to someone else to do. We’re all in this together.

Which brings me to my song for today. All These Things that I Have Done, by The Killers. On my new Killers playlist, put on my iPhone by my son. You know, the one with type 1 diabetes. Who still loves his music, his drama, his politics and philosophy. Who is still infinitely kind and good despite everything he goes through. How we long for a cure sometime in his long, long life to come.

In fact, as I type this I can hear him playing the very same song downstairs on the computer. While doing his homework mind you —  but we won’t go there!

After seemingly solving high night time blood sugars through a tiny raising of insulin, over the last two nights we’ve had to steadily drop it down again. Sigh. He woke up one morning VERY low…We’ve been lucky that he’s never been so low as to be unconscious or not able to look after himself…but some people with diabetes, when they encounter numbers as low as he has had, find themselves unconsciousness, or worse.

SO. We had two nights of unbroken sleep (the first since Christmas), but are now back on the treadmill of night testing. Things are just too unpredictable at the moment.

***

All that aside (yay!), meanwhile two more furry creatures have entered our lives. Meet Mimi:

and

Peaches:

They are very gorgeous, good fun, cuddly, and make a pretty hilarious soundtrack, with their squeaks and boinks…

This is the first time we have ever had guinea pigs, and they arrive after three years of soulful longing by daughter M, who had reached the point of weeping when we left pet shops, and railing against all who keep pets and don’t take care of them, because she would do so much better a job and REALLY love them…This is all true, of course. Love them she does, taking full responsibility for feeding and cuddles.

The cats of course are bemused: what could possibly lie behind that closed door? Obviously, we aren’t letting  them in there yet. If ever. Schubert has caught an astonishing array of beasties in the garden over the last couple of years — countless voles, mice, a snake, three birds, two rabbits….I know, I know. It’s a bit much. So we are being wary, to say the least. Last night I had to get up and put a suitcase in front of the door, they were scratching at it so much. It’s cat-night-fun as much as anything, I’m sure…

***

Also in this category was a happy gym morning yesterday: this time another song from E’s playlist, and one that is so bouncy  and postivie that I never do anything but smile when I hear it. I realise now that the ups and downs of all this often bear little relation to the ups and downs of blood sugar numbers. They are as much if not more to do my own relative fragility. Anyway, the song. Peace and love man…

As anyone who moved over from my other blog will know, I am prone to weeping both on the way to the gym (hearing Obama’s acceptance speech, for instance) and while actually in the gym (endorphins, no doubt).

In general — and I’m sure you’ll understand — I have cried more than I have ever cried in my life these last 15 months, since E’s diagnosis. That’s just the fact of it.

However, I don’t cry as much as I used to, or as uncontrollably, or without warning. Which is altogether easier to manage!

However. Again. I do still often — VERY often — feel tearful in the gym. The harder I work, the more I cry.

I always listen to music there. And I almost always listen to playlists that E has put together and put on my iPod (sorry, now iPhone!). These two are from his original playlist, made for me about two months before his diagnosis. And they are this morning’s gym weeps. I almost had to get off the bike.

Mainly because I love his passion for life. And I won’t let all this get the best of me. Just as he hasn’t right from the beginning.

and

Setting sail

In November 2008 my 12 year old son was diagnosed with type 1 diabetes. The effect of this event on me -- and on our nuclear family -- was like being thrown overboard and watching the ship leave.

'Dealing with type 1' in the family has morphed into another sort of 'dealing' -- a wholesale resituating of parenting, of family dynamics...of life.

At my son's diagnosis I could not to locate a record of what living with a type 1 child in the family is like. I could not see myself or our family anywhere. I longed for a starting point, a resource and a sense of the future. Being a writer, my instinct is to write it. This space, I hope, is a start.

Blood Sugar Ranges (UK)

<4 mmols = low or hypo, life-threatening if untreated
4-8 mmols = within target range
8-13 mmols = high but not usually dangerous
14+ mmols = very high, or hyper, life-threatening if untreated

Bubbles

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Distance Travelled

Disclaimer

I am not a medical professional. Any view expressed here is my opinion, gleaned from experience, anecdote or available research.