(With apologies to Grace Paley…)

Here’s what happens:

1) You know those night lows from my last post? Well, we didn’t change the insulin the next night, because you should not change on just one set of events. Good thing, because it was a ‘chips’ night — the first  in many months. And E went high all night. We battled him down by testing in the night twice.

2) Yesterday morning E woke on a good level. But within an hour had risen 6 more mmols — huh? Well out of range. Due a set change, so did one, thought this might solve things.

3) No such luck. Continued to be in the upper reaches of not-good ALL DAY, despite numerous tests and corrects. We just kept piling in insulin. Is he ill (how do you feel?)? What did he eat (eat anything different?)? Etc. Can ONLY conclude that once again, his insulin needs have shot up. Overnight. By 20%.

It’s true that in the last month he has grown to be a centimeter taller than me. From a centimeter shorter. The boy is eating everything in sight, even cleaning his sister’s unfinished dinner plate, despite cooties!

4) So last night we keep the same high amount of insulin. Get up at 2am to test: and he’s higher than when he went to bed! Argh. Correct with more insulin, and get up again an hour later to make sure he’s going down (otherwise could be sky-high by morning), AND raise the basic insulin of the pump by another increment, all night.

5) This morning, still high but not sky such.

I mean, really. It’s like a dream, only it’s real: watching the bus you want to get on pick up speed, and you are running and running after it. You get on it, only to realise it’s going the wrong direction. So you get off it and run after another one, which of course is just out of reach.

The point is:  you never arrive. You never, ever get there. But if you don’t keep trying, all this lovely food he is eating will not metabolise. He will not grow properly. He will suffer complications, even when quite young. It’s that simple.

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